First In a Series of Real Life Narcoleptic Stories! Nikki.......
This entry was posted on 11/7/2006 8:10 PM and is filed under Day to Day Living,Your Experiences,Help Others.
My story:
Hello my name is Nikki and I have been diagnosed with Narcolepsy
for over 2 years now. I first noticed my symptoms in Nov 03., they
started out small and grew into a big problem. The situation escalated
out of control, when I fell asleep at the wheel and hit a parked car realizing at that point in my life all I did was sleep. I was falling asleep on
my feet at work and sleeping 10 to 12 hours every night. Not much was
being done by my family doctor so my mom and I set up my appointment at
the sleep lab. I was given my sleep study 10 days before my wedding,
and got my diagnosis about a month after wards. It took a while for the
diagnosis to really sink in. Once all the pieces fell into place, I
fell to pieces. My life has not been the same, and as sad as it makes
me I know it never will be the same again. The worst symptom for me is EDS or excessive
daytime sleepiness. Tired for me is a good day, there really is
no way of describing the utter exhaustion that I battle every day. It
does not matter how much sleep I get, I am always and will always be
tired. There are medications available to help, I currently take 3 to
try to keep my Narcolepsy under control. I struggle through each day go to bed
and then get up just to do it all over again. Narcolepsy is not a killer,
it is a thief. It is an invisible assailant that robs us of our
livelihood and energy. Narcolepsy is a serious and overlooked problem.
Please help us spread awareness and understanding about this
debilitating disease. Thank you!
Best Regards In Health,
Living Narcoleptic
